Overview of the 20th World Hemophilia Day

How much do you know about the 20th World Hemophilia Day? Take a look below, I believe you will gain something!

The theme is:? Let us care together ( together, we care)?, the purpose is to call on the whole society to pay attention to hemophilia, care for hemophilia patients, and advocate "comprehensive care" so that they can receive more timely and comprehensive treatment and help, so as to enjoy A freer, happier life.

To commemorate the 20th anniversary of World Hemophilia Day, Baxter and the World Federation of Hemophilia have joined hands to raise public awareness of hemophilia and comprehensive care, and released today? Let us Let’s Care? video aims to raise public awareness of the importance of comprehensive care in the management of hemophilia and call attention to the gaps in care and care around the world.

According to the World Federation of Hemophilia, only 25% of people with bleeding disorders receive adequate treatment. In China, the ratio is even lower, only about 10, and due to the lack of blood-borne factor eight products, many patients cannot receive appropriate treatment.

?Haemophilia is a serious disease that can even be life-threatening, but with a comprehensive care management approach, including treatment and care from a professional medical team, people with hemophilia can live longer. "We are grateful to Baxter for supporting this video, which will serve as an important educational tool for all people with bleeding disorders," said Mark Skinner, President of the World Federation of Hemophilia. Sufferers of the disease trust that they will receive appropriate management, care and treatment no matter where they are in the world. ?

This video provides a communication platform for national member organizations of the World Federation of Hemophilia, Baxter employees, and members of the global hemophilia community to help call for care for hemophilia patients everywhere. It highlights the importance of comprehensive care teams in improving individual patients' lives from the perspectives of patients, physicians, nurse coordinators, and advocacy organization representatives.

To improve the standard of care and access to treatment for hemophilia patients worldwide, Baxter provides a wealth of resources, including education, advocacy programs and support, clinical support, and factor replacement therapy, which is An essential component of a comprehensive approach to care. It is particularly worth mentioning that Baxter also donated US$1.5 million and nearly 3 million units of hemophilia treatment products to the global alliance for progress (gap) project under the World Hemophilia Alliance. The company is also a founding member and main sponsor of this project. The gap project was initiated by the World Federation of Hemophilia and its members, aiming to improve the diagnosis and treatment of hemophilia in nearly 30 developing countries.

At the same time, Baxter China and China Hemophilia Home will launch a photography competition with the theme of "Live a Wonderful Life" on Hemophilia Day. The event targets hemophilia patients and their families, aiming to improve Hemophilia patients have the confidence to overcome the disease and face life bravely, and increase the attention and care of the entire society for hemophilia people.

?We are proud to be part of the global community. By supporting the Let's Care video and the Living the Great Photo Awards, we hope to raise awareness of the impact hemophilia has on people around the world and encourage more people to join the fight for all people with blood. Provide high-quality services and care to patients with diabetes. ?Said Gu Chengming, director of biotechnology and medical affairs of Baxter Asia Pacific region.

About World Hemophilia Day

April 17, 2019 is the 20th World Hemophilia Day. Since this day was established in 1989 to commemorate Frank Schnabel, the founder of the World Federation of Hemophilia, World Hemophilia Day has not only become a day of celebration for the hemophilia patient community, but also provided an opportunity for the public to learn about hemophilia. and other bleeding disorders have a huge global impact.

About hemophilia type A

Hemophilia type A is mostly hereditary and is caused by the lack or reduction of factor VIII, a protein required in the blood coagulation process. Without enough factor eight, people with hemophilia develop spontaneous, uncontrollable internal bleeding that causes joint pain, damage, and destruction. About 30% of cases have no family history of hemophilia but are the result of spontaneous genetic mutations. According to the World Federation of Hemophilia, there are more than 400,000 cases of hemophilia worldwide, spread across all ethnic and economic groups. Based on an incidence rate of 5-10 per 100,000, it is estimated that there are about 100,000 hemophilia patients in China.

About the World Federation of Hemophilia

The World Federation of Hemophilia is an international non-profit organization dedicated to improving the quality of life of people with hemophilia and related bleeding disorders. Founded in 1963, the World Federation of Hemophilia has grown into a truly global organization with member organizations in more than 113 countries and is officially recognized by the World Health Organization. The World Federation of Hemophilia works with medical experts, people living with hemophilia, governments and regulatory agencies, industry and foundations to improve hemophilia care worldwide.