Slogan of caring for epilepsy

What a coincidence! Yesterday I wrote an article about my boyfriend and girlfriend suffering from epilepsy:

Boyfriend/girlfriend suffers from epilepsy, should I break up?

Screenshot of doctor's question and answer: Can epilepsy be inherited?

Doesn't affect love at all. Epilepsy patients can fall in love and get married like ordinary people. Love is a pure and beautiful human emotion, and the process of love must be serious. Find the right time and tell each other objectively about your epilepsy. Don't hide it.

It is necessary to communicate frankly, so that you can get better understanding and help from your lover in the future. When two people hit it off at first sight and establish a stable love relationship, and gradually move towards the marriage hall, they should know the relevant knowledge about sexual life and childbirth in time, and do a good job in the management of less seizures and no seizures. From then on, we care about each other and have no problem growing old together.

In fact, there are many problems, and there are also many problems about one-time literacy.

Should I ask my boyfriend?

Worried about passing it on to future generations?

Of course, people with epilepsy can get married. All men and women who meet the relevant provisions of the Marriage Law of the People's Republic of China have the right to get married, and no one may interfere. Of course, school-age epilepsy patients can get married. It is suggested that both men and women consult doctors on how to use epilepsy drugs before giving birth and do a good job of "epilepsy management". In view of possible genetic risks, we should find and avoid them, consult epilepsy specialists and doctors in other related disciplines to prevent fetal malformation (the incidence rate is almost the same as that of ordinary people) and ensure prenatal and postpartum care.

Having children, genes have little effect on love in epilepsy. The heart has been destroyed, and people can still be patient when speaking in fear. If there is another inheritance, it will really make people desperate. Don't worry, please rest assured that the next generation will be born. If there is no family history, genetic factors can basically be ruled out. If you are still worried, it is recommended to have a genetic test of genetic risk before giving birth.

There is no scientific and rigorous evidence to prove that epilepsy has obvious heredity! Only some seizures may be related to genetic abnormalities. Under the current medical testing conditions, only some genetic genes can be found, that is, people with high susceptibility (the possibility of illness), and other genetic diseases can also be accompanied by epilepsy, such as tuberous sclerosis, cerebral and facial hemangioma, neurofibroma and so on.

Theoretically speaking, if both parents suffer from epilepsy, the probability of children suffering from this disease will increase. The prevalence of epilepsy was 3.8~ 10.8% in patients with family history of epilepsy. Therefore, many children have a family history of epilepsy, but they have no seizures themselves. To sum up: epilepsy is caused by "? Your own genes? " And "? Environmental factors? " * * * The same decision.

According to the doctor's advice, do a good job of "epilepsy management" after marriage. At present, the treatment of epilepsy is still mainly drugs. Among newly diagnosed patients receiving antiepileptic drugs (aed):

About 80% patients can control seizures through drug treatment;

About 50% patients were relieved after receiving the first monotherapy. About 30% patients were relieved after the failure of the first single drug treatment and switched to another single drug treatment or multi-drug combination treatment.

In addition, about 20% of patients' seizures have not been well controlled by drug treatment, and become drug-refractory epilepsy.

After consulting Wang Qun, director of the Epilepsy Department of Beijing Tiantan Hospital, he gave three suggestions:

1. To see a doctor, you should go to a regular hospital to find a regular doctor, and increase or decrease drugs and listen to the doctor.

2. To understand the side effects listed in the instructions, not everyone will encounter them. Don't scare yourself;

3. Most of the side effects are mild, and the duration is not long. Don't stop taking drugs at will.

Internet privacy self-management, buy epilepsy accident insurance after marriage, reduce worries. The theme of the 7th International Epilepsy Care Day: "To realize your dreams and eradicate epilepsy, starting with keeping a diary according to the doctor's advice"? . Besides "following the doctor's advice", we should also insist on "keeping a diary". Now everyone has a smart phone, which is very convenient for self-management of diseases and has good privacy. You can contact the doctor at home, keep a diary on your mobile phone and synchronize with the mobile phone doctor.

Epilepsy is the second most common disease in neurology in China after headache. At present, many epileptic patients can't get high-level standardized diagnosis and treatment, and as many as 67% of them have not been diagnosed or received treatment, which means that nearly 6 million epileptic patients are completely out of control. Using mobile phone to manage epilepsy is beneficial to the country and the people, which has high medical and social value. In addition, there is good news. China Ping An Insurance (Group) Co., Ltd. jointly launched the first epilepsy accident insurance in China.

Conclusion The greatness of love can't be stopped even by epilepsy. I wish you all a happy marriage, mutual care and a long life together.