Thalassemia gene-related cases

The first case of genetic discrimination

Three civil service candidates in Foshan were rejected for carrying the "thalassemia" gene, and then sued the Foshan Human Resources and Social Security Bureau. The first case of genetic discrimination in China was held in Chancheng District Court for the second time yesterday. The court read out the medical advice of the Institute of Hematology of China Academy of Medical Sciences, saying that "thalassemia gene carrying belongs to hematological diseases." The Ministry of Health and Ministry of Human Resources and Social Security should explain and explain the plaintiff's request for attorney.

2010 On April 3, Professor Li Chunfu, an expert on thalassemia research in Guangdong Province, said that thalassemia gene carriers can be regarded as mild thalassemia and can be regarded as a big concept of blood diseases, but there are many kinds of blood diseases, which should be treated differently. "Mild poverty" can only be regarded as a normal person in Guangdong.

Medical consultation: Thalassemia gene carrying is a blood disease.

2013 At 2: 30 pm on April 6, Li, the agent of the plaintiff's three candidates and a famous public interest lawyer, and another agent rushed to Foshan from Beijing to appear in court. The defendant Foshan Human Resources and Social Security Bureau was also represented by a lawyer.

As the "first case of genetic discrimination in China", this incident has also attracted media attention. 10 More than 0 local and provincial paper media and TV reporters were present, and long guns and short guns were waiting at the gate of the court. Last year, many candidates and their parents who were also rejected for carrying thalassemia gene also attended the trial.

On March 5, 20/kloc-0, the Chancheng District Court informed the original defendant, asking him to negotiate and choose a medical institution in another place to issue a medical opinion on whether carrying thalassemia gene is a blood disease. Later, the court sent a letter to the Institute of Hematology of China Academy of Medical Sciences, asking questions such as "What are the routine blood examination items, whether they include MCV (mean red blood cell volume)" and "whether the thalassemia gene mutation in this case belongs to hematological diseases".

On April 3, 20 10, the court read out the reply of the above-mentioned institute on April 7, saying that whether to test MCV varies from hospital to hospital. Generally, large hospitals have such tests, but they are not mandatory. At the same time, it means that "thalassemia gene carrying is a blood disease."

Plaintiff's lawyer: The Ministry of Health should make relevant explanations.

Yesterday, both the original defendant and the defendant expressed dissatisfaction with the above-mentioned medical advice from the Institute of Hematology, China Academy of Medical Sciences.

Li, the attorney of the three candidates, said that there were objections to the authenticity and legality of the defense opinions, because the defense opinions were only stamped with the official seal of the Medical Department of Hematology Hospital of China Academy of Medical Sciences (namely, Institute of Hematology), without the signature of experts, and the specific views of each expert were not explained.

Liu Jianhao, the plaintiff's agent, said that whether carrying thalassemia gene belongs to hematological diseases should be explained and explained by the Ministry of Health and Ministry of Human Resources and Social Security, or authoritative experts should be organized by Hematology Branch and Heredity Branch of Chinese Medical Association to give medical advice.

As the defendant, the attorney of Foshan Human Resources and Social Security Bureau said that according to the relevant regulations of the Central Ministry of Personnel, the medical examination of civil servants should be conducted in the medical institutions designated by the competent departments of civil servants at or above the municipal level, and only the medical examination conclusions made by the designated medical institutions are valid. Other appraisals and medical opinions are invalid and cannot be accepted.

On April 20 13 10, the trial lasted for 45 minutes, and the court indicated that it would decide on another day.

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"Thalassemia gene carriers" wore masks to protest. 10 On the afternoon of April 4th, after the trial, a young man wearing sunglasses and a mask appeared at the gate of Chancheng District Court, which attracted the attention of many media reporters.

My last name is thalassemia, and my name is carrier. In the face of inquiries from many media reporters, the man's predecessor was labeled with the slogan "thalassemia gene carriers are unqualified" and the back was labeled "thalassemia gene carriers will never get sick! Thalassemia is acquired through heredity and is not contagious! Thalassemia patients are more resistant to malaria! " These words.

Finally, in the face of reporters' questioning, the man said that he had been admitted to Foshan civil servants many times in recent years. In 2009, he was also rejected because he was found to have thalassemia gene in the physical examination. When he learned that the case was in court, he specially came to attend. At the same time, he said that in order to appeal to the public to support "people who are discriminated against by thalassemia gene carriers", he specially prepared props and took the initiative to accept media interviews with the above clothes.

The man also said that he was prepared to join the ranks of candidates who were "brushed down" in recent years because of the medical examination and found that they were carrying poverty, and jointly sued the personnel department of Foshan City in court.

Why is it difficult to carry thalassemia gene?

2010 On July 30th, Guangzhou Daily reported that a week ago, 32-year-old Lang Hao (pseudonym at the request of the client) finally got the final answer-he was a supervisor for three months and suddenly disappeared.

Lang Hao believes that it is because of four words in the medical report: suspected poverty. Since knowing that he has a family history of thalassemia gene in 2005, Lang Hao has "jumped ship" to many companies; This time, he thought that the genetics finally tripped him up. What makes Lang Hao pessimistic is the hidden spread of genetic discrimination in the workplace. "Last year, it was just a government department in Foshan. This year, it has spread to some institutions and state-owned enterprises in Guangzhou. "

The road ahead for non-governmental forces to promote anti-genetic discrimination may not be easier than the anti-hepatitis B discrimination that has been fighting for many years. The factors behind the rapid formation and spread of genetic discrimination are not as simple as it seems. As for the consequences of the spread of genetic discrimination, people know very little and it is hard to imagine.